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I promised I would share this info every where I can  Rate Topic 
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 Posted: Mon Apr 9th, 2012 03:28 pm
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SPOTD RIDR
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Prayers for your loved one Sharon.

 



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 Posted: Tue Apr 3rd, 2012 05:28 pm
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whattarack
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She has hypermobility and worse . . . the vascular type. She's had a bad run of problems since East Fork. Her shoulder still isn't healed since it dislocated in October. She cannot work. She has since injured her wrist and dislocated her fingers. And, she was in the hospital for days with colon problems. She just can't seem to heal this time. Still though, she's Connie, aka SUPER WOMAN.

I'll whisper a hug on her for you.



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 Posted: Tue Apr 3rd, 2012 03:14 pm
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Brenda Im
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Thank you so much for sharing this, Sharon.

How is Connie, and what type of EDS does she suffer from?  Give her a (careful) hug from me.

Love ya,

Brenda



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It's not always about trying to fix something that's broken. Maybe it's about starting over and creating something better.
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 Posted: Mon Apr 2nd, 2012 01:06 pm
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whattarack
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I love someone with Ehlers-Danlos Syndrome.
 
Show you care. Be aware.
Organizations for the awareness, treatment, and cure of EDS ask that we educate ourselves so we know better how to support
someone with this syndrome. To date, there is no cure.
 
Here are some informative links.
Please share these as you will (with all your contacts - also with your physicians and medical community) to help educate the world about this syndrome.
If you know of other informative links, please add them to the list.


http://www.ednf.org
 
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002439/
 
http://www.mayoclinic.com/health/ehlers-danlos-syndrome/DS00706
 
http://www.ehlersdanlosnetwork.org/
 
http://www.medicinenet.com/ehlers-danlos_syndrome/article.htm
 
http://www.cincinnatichildrens.org/health/e/eds/
 
http://www.med.nyu.edu/content?ChunkIID=128098
 
http://www.pathology.washington.edu/clinical/collagen/
 
https://www.bcm.edu/geneticlabs/test_detail.cfm?testcode=6590&show=1


To show your support for people with EDS, please post the ribbon on your social media pages.

Thank you for caring and sharing.


 


Attachment: l848570184.jpg (Downloaded 60 times)



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